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One of Us

A Family's Life with Autism

ebook
1 of 1 copy available
1 of 1 copy available

In 1991, Mark Osteen and his wife, Leslie, were struggling to understand why their son, Cameron, was so different from other kids. At age one, Cam had little interest in toys and was surprisingly fixated on books. He didn't make baby sounds; he ignored other children. As he grew older, he failed to grasp language, remaining unresponsive even when his parents called his name. When Cam started having screaming anxiety attacks, Mark and Leslie began to grasp that Cam was developmentally delayed. But when Leslie raised the possibility of an autism diagnosis, Mark balked. Autism is so rare, he thought. Might as well worry about being struck by lightning.

Since that time, awareness of autism has grown monumentally. Autism has received extensive coverage in the news media, and it has become a popular subject for film, television, and literature, but the disorder is frequently portrayed and perceived as a set of eccentricities that can be corrected with proper treatment. In reality, autism permanently wrecks many children's chances for typical lives. Plenty of recent bestsellers have described the hardships of autism, but those memoirs usually focus on the recovery of people who overcome some or all of the challenges of the disorder. And while that plot is uplifting, it's rare in real life, as few autistic children fully recover. The territory of severe autism—of the child who is debilitated by the condition, who will never be cured—has been largely neglected. One of Us: A Family's Life with Autism tells that story.

In this book, Mark Osteen chronicles the experience of raising Cam, whose autism causes him aggression, insomnia, compulsions, and physical sickness. In a powerful, deeply personal narrative, Osteen recounts the struggles he and his wife endured in diagnosing, treating, and understanding Cam's disability, following the family through the years of medical difficulties and emotional wrangling. One of Us thrusts the reader into the life of a child who exists in his own world and describes the immense hardships faced by those who love and care for him. Leslie and Mark's marriage is sorely tested by their son's condition, and the book follows their progress from denial to acceptance while they fight to save their own relationship.

By embracing the little victories of their life with Cam and by learning to love him as he is, Mark takes the reader down a road just as gratifying, and perhaps more moving, than one to recovery. One of Us is not a book about a child who overcomes autism. Instead, it's the story of a different but equally rare sort of victory—the triumph of love over tremendous adversity.

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    • Publisher's Weekly

      April 18, 2011
      A Professor of English at Loyola University and a father, Osteen writes with candor as describes the frustrations of advocating for a child with special needs. His son, Cameron, is autistic, and Osteen wonders through their struggles, "if even Cam would choose to live through all this again." The potentially bleak story, written about a son who will never read it, is balanced with thoughtful consideration of larger issues, such as parent/child conflict, responsibilities for the disabled, and the meaning of family. We also see disappointing descriptions of schools, institutions and organizations specifically designed to educate children with disabilities, and the politics of their care-taking. The narrative is well-written and Osteen recreates events in a conversational style. Scholarly references are included, such as a succinct and lucid explanation of the Lovaas method of Applied Behavioral Analysis, a controversial therapy for autism. Occasionally heartbreaking, at times darkly humorous, the text demonstrates not only the ordeals of a family, but also the ingenuity of human survival. Photos.

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Languages

  • English

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